Now all tests are run and our girl is happy that she is loosing stress.

At 05/02 the expert of the MDK was here to look at us to see if we get a level of care for our girl. Now we have to wait for the decision and the opinion. It will be interesting.

At 06/24 will be the coveted certificate and thus is a major step towards the future settled. Then it's holidays until the end of August.

And with good luck for a long time, it will then be the first holiday without hospitalization, without worries and without relapse. We wish it very much.

Then it goes back to sail to Stralsund. That our princess done so well and like. This time we booked a mobile home on a campsite at her request. Our mouse wants to make up for much of what she could not experience the past few years. This time there is for her and her dad a full day sailing and I enjoy this wonderful city all day. So let your fingers crossed that it remains in remission, so that we can enjoy the weekl at the beach, summer and sea.

But first we have to complete the appointment in the outpatient clinic and get the feedback that the liver function tests are normal.

Otherwise currently no new developments. Daily pain is normal for us now. Food is still tolerated so-so, many causes diarrhea, but even that has become everyday life for us.