On Tuesday the hell is going on. When I got home from work, I found a weeping heap of misery before me. Nothing this kid was calm.

Somehow we managed to be on the bed, I sit, my big kid somehow rolled into my arm half on my lap. What had happened? When she went out of the house to schoolin the morning, everything was in perfect order.

Since she was not to get calm and rather still more increased in a panic inside, I called at the hospital in Bielefeld and telephoned one of the therapists who had cared for our girl during complex pain therapy. But they could not really help, so we drove to Hamm in the LWL Clinic for crisis intervention. Since then new panic comes up our girls thought that we will keep her there and she dis not want to be separated again at any price from us. The three months pain therapie had once served her.

In talks with the psychologist then came out that our girl had already pain attacks, but nothing she told us. The day before yesterday she had then probably a very bad thing. In addition still all the "stress" of recent months separated from us in the clinic that many therapies there ... its leaden weariness that has probably not really improved (which she has not told us) and the pressure that she makes herself, because she wants to repeat the school year in no way ... All this has probably performed under the pain to an absolute collapse.

After she was back to stable, we were allowed to take her home. At home there were only briefly some food (we all had nothing since morning) and then we already crept into bed. Dead tired and worn out.

Yesterday we left our girl out of school so that she can recover somewhat and can recharge her batteries, then to write her math work in peace today. My husband and I shared operatively, so that always one was at home to be available to our mouse if needed immediately.

In the afternoon we went to a piano store, because I had heard, electric pianos would be just as great as pianos but smaller and cheaper. Since we could not imagine anything about this, we drove to a piano house to have a look at electric pianos. Our girl played all sample ... E-Piano and wing piano ... Changed from here to there and from there ... it became apparent that there really should be a piano ... And suddenly t stood there ... "her" piano ... she saw it, sat on it and started to play ... and we saw all the pressure of her dropped, as she was completely in another world ... relaxed, released, happy.

And you can believe us when we had the money for this used piano, it had been purchased immediately.

This morning our girl felt good so far. Except for the fatigue and pain in the jaw because of the braces. I hope that her joints today times produce no pain and everything is going well.

Immediately after Easter we have the appointment in the day hospital and there I will ask why this pain is back and why that is getting better only briefly. Our girl can not live in constant pain.

What I noticed is that I have not even written yet. We had asked for our mouse a request for a severely handicapped pass last year. I calculated with max. 30% internally set to a fight to get me to the 50%  ... When the decision came, I was flabbergasted. We were immediately given without a fight in the first application 70%.

Everyone who plays with the idea to make an application to severe disability should remember that you do not get the percentages for the diagnosis, but for the restrictions that brings the diagnosis with it. Therefore, I advise everyone as fully as you possibly write down all the problems.

It would be true that you got so many percentages without fighting, but to have so much writing HOW your child is sick, hurts like hell.