Today I got a call the KK. The nice gentleman who has processed and approved our cure application called me a bit desperate.

Caritas as cure agent has already made it clear they can not help us now, he had tried to accommodate us, but even these sanatoriums refusing to host us. If they are not as honest and tell us directly that the disease of our girl too difficult and too dangerous, they hide behind her age. After all, our girl's 15. But that the same clinics have on their websites written "Up to 14 years or older in exceptional cases after consultation") does not care them much.

Why should they? It does not concern these people, but us. So I have taken again from despair into their own hands and phoned the cures.

Result? One, I repeat in numbers ONE cure did not immediately repeat "No thanks," and then checked our records. The documents were immediately faxed by the supervisor of the KK and us again assured that the KK further stands behind us.

Whether there's a miracle? Although I do not believe it, but you should not give up hope.

Then the supervisor of the KK made the suggestion once a child rehabilitation thinking. As he expressed himself? "We have now arrived at a point, and disease-technically with your daughter where a rehab think MUST be. A cure is without wanting to say it nasty, please merely expectant not sick, so a precautionary measure. But your child is to seriously ill. " So why am I doing me now smart about it.

The fact is, we all three have no energy. Actually we want only once a week or two to get out all out to relax and just be able to even recharge our batteries.

But that will probably remain a dream.