At 12/09 the next day clinic appointment and I must confess, I have such a fear, the remission is again lapsed.

Today, my girl did not go to school, she had indeed tortured at 6 am from the bed, but the way she was doing, made no sense.

This terrible tiredness (fatigue syndrome) has made so much of their lives, that it is already temporarily frightening.

Earlier I went into her room to give her the tablets and it is hard to get her awake. Then immediately turns back around and that was it until noon today. We have not really made anything strenuous at the Weekend. On Saturday we were in Duisburg and visited friends are not even walked through the Christmas market and on Sunday Laura and I have made a little trip to visit. No excessive movement, no crowds .... and yet it has been the end of their power this morning.

So now wait again ... waiting for the appointment, waiting for the blood test results ...